Autumn Whispers to Me: An experience. A book-to-be.....

My favorite time of year is here, and I've taken the first steps to re-vamping my sites so I can have them live again.  A story, a memory, and a future-book, "Autumn Whispers to Me" will be live soon.  Until then, there are the audio blogs...

September 01, 2016: Life, rant, confusion... yeah, whatever.

Life.  Amiright?

Audio Blog Continues....

Healing being what it is, and a very long process at that, I'll be audio-blogging for a bit.  The last few days have been seriously confusing, chaotic, and stressful... so that's what I end up with when trying to talk about it.  Fun, eh?  :/

Risk for Redemption.

I played a bit with the idea of composing an audio/vid for myself, just something to remind me that there was, in fact, a time when I felt like a normal human being, when pain was minimal and sometimes absent, when I could behave normally, when restrictions of body (and now spirit and emotion) hadn't taken hold.  I know I used to feel better and actually participate in L I F E.  But for the life of me, my mind edits at will and separates the now from the then, the me I became and the me I once was.  So to keep it all in perspective... I made an audio movie with pics ranging from 8 months ago to 4 years ago, before this big crash in everything that is 'my life' and 'me.'

I was hesitant to upload it here (still am), but a friend of mine said "Do it.  Put it ALL out there, and to hell with what anyone thinks!"  It feels odd to see my own face all over this video, but... it's mostly for me anyway, something I can look at and recall that L I F E was there in me, and maybe.. just maybe... I will start believing again.  enough of the typing... arm aches horribly.

The compilation set as a reminder of where I once was in my L I F E and H E A L T H, remembering a healthier, happier me... taking a risk for redemption of myself, an apology to tell the woman I've become.... 'I'm so sorry I let you down."

What if...

What if I said I wanted to pour my heart and soul out to you?  What if I could, even for a very short time, find such trust that nothing, absolutely nothing would be off limits in what I could share?  What if I didn't hold back, didn't keep my entire heart's secrets walled off from the rest of me, and expose every one in such detail that it took your breath away?  What if... I told you a secret you'd never forget, no matter how hard you tried?

What if you could be surprised at the stories I hold inside?

What if I told you that I've never trusted a soul 100% in my life but that I'm willing to now?

What would you ask me if you could ask me anything?

What if I told you that you'd be surprised at who I'm talking to, and would you want it to be you?

The Handshake.

A relationship is like a handshake.  One person extends their hand and the other extends theirs in acceptance.  This is the best case scenario, however, and relationships leave one person waving their hand in the air and feeling foolish.  At some point that dance just doesn't work anymore and we have to decide wether it's all worth it or not.  But how do we know WHEN it's time to place our hand back in our pocket and walk away?

There's no difference in friendships and we've all seen those fail miserably due to one-sided participation.  It's not usually an instant fail, btw, and we come to the conclusion to walk away after a lot of energy is spent trying to be the one acquiescing, initiating, or taking the blame for the short-comings within the relationship machine.

So if we know how it works in friendships, why do we take so damn long with romantic relationships?  I think part of it is that there's a much larger prize at stake when it comes to that kind of connection that leaves you ultimately vulnerable and exposed.  That other person, unlike a friend (usually) has seen you literally at your worst, your best, naked, knows most if not all of your secrets, and the love and affection that ties it all together is not that easy to break.  In most cases.  Either way, there's just a lot at stake when talking romantic relationships vs friendships.

Friendships do last longer.  And if you think about it, it's most likely because you're not living with that person or trying to divvy up responsibilities, not relying on that person when it comes to the hard times.  I mean, yes, there is some of that, but again.... you just can't compare the two.  There is an exception, however, to this rule, and that is that we actually can apply what we are willing to put up with when it comes to carrying the load of that relationship.

I don't care about the numbers, myself.  Wether you call it 50/50 or 100/100 it still requires both sides to assess what's what and decide a compromise when one side is no longer able to carry the larger portion of the load.

My point here is this: At some point we have to acknowledge when something is harming us, wether it's physical or emotional harm, be it stress or overt abuse, we absolutely HAVE to make a decision at some point while we still have enough of ourselves left, before any real long-term damage is done.

Every day I'm reminded of how much I have to carry, what I'm left to be responsible for, and just how little energy and strength I have to take that on.  Physically I grow weaker each day.  My specialist has upped the Azathioprine about as high as I can take it, and I'm waiting to see if/when this begins to pivot the illness and begin to heal what's wrong.  In the meantime I'm extremely weak, often sick (nausea, etc.), and I have to lay down in bed several times a day now.  This means little gets done because I'm not able to do it myself.  Simple things, really.  Chores that I could handle easily back when I was healthy, living alone and with many more time-consuming responsibilities.  The difference between he and I is that I did what needed to be done and was glad to do it.  I can't live in a dirty or nasty environment so fight my way through the day trying to do what little I can.

I'm so so so done with this.

And since the communication is one-sided (out of his laziness. No joke there.) I'm beyond exhausted. I'm back to my focus being on ONE thing and ONE thing only--getting well.  I will be well enough to take my life back when the time comes and he's going to find himself in the dust when it happens.  It's his own doing, and he's not going to be happy about it when it happens, I promise.  He's been warned of this, and he's coasting along like he can't see it happening already.  But it is, happening already....

The Truth.

The world has gone mad.  Or more specifically, America has gone mad.  In all my life I've never seen such division, such bitter hatred on the left, such utter madness.  And it is madness.  I don't watch the news anymore because it's simply the most depressing thing ever, honestly.  We all know the media lies, stretches truth, etc., but recently trusting anything put out by the media is just buying into fiction.  And to that I say--open a book and read, because there's more truth in a Stephen King novel than there is on CNN, MSNBC, FOX, etc.  If you're going to waste time, might as well have fun, and there's nothing fun about what's going on in the media.  And worse, are those buying into the garbage.

Whatever happened to the truth?  What's happened to people that they're SO willing to except, embrace, and repeat lies that have been repeatedly debunked?  Rhetorical question, because we all know that people will ultimately believe what they want to believe and there's nothing anyone can do to change that.  Once sucked into the gaping black abyss of a lie--it takes a tremendous effort to find your way out.

As for me, I choose not to buy into the garbage.

But I'm sad to see how much hatred there is in our country, hatred born of the dirty side of government, of politics, and of greed.

I'm not sure at this point that any one thing or person or event could turn it around.  People are to blame for their own thoughts and actions.  They make the choices, and no one is twisting their arm.

It's just so tiresome.

We don't have to agree with one another to be civil.  We don't have to think alike or look alike to be civil.  We don't even have to like each other in order to respect one another.  All social graces, all levels or morality and decorum can be maintained under almost all circumstances if we make the choice to rise above it all and do the right thing.

I have no idea what the outcome of this election will be, nor do I even pretend to think that we're all going to end up changed by the end of it all.  We're already changed.  All we can do now is dig our heels in and hold our ground despite the odds.  I'm ready to do that, and I know a lot of others are as well.

We'll take things day by day like anyone else, but none of us are willing to be bullied by the 'powers that be' or radical domestic terrorist groups.

They can try like hell to stop us.  But here's the deal: We're not going anywhere.

Deal with it.

The Real Donald Trump

Dan Scavino said today that it's a shame the media will never talk about or show the kind heart that Donald Trump has. Those of us who grew up seeing the interviews from as far back as the 80's know he wasn't hated but rather watched in awe. How could a super wealthy guy could be so... down to earth? Well, he just is, and he always has been. While the media and establishment try their best to bring him down ...it just doesn't work, and it won't because most of us who support him already know of him. We've paid attention because, well, how can you not? So when you hear the slander and lies, and they are lies, remember this: A lie will travel the world and back while the truth is still putting on its shoes.

The Similarities of Day to Day Life.

Or shall we call it "A life of perpetual sameness"?  Either way, I'm going to make damn sure I change this.  I have to.

I've posted enough here for you guys to know where I am at the moment.  Dealing with communication and respect issues from T, issues that make themselves known every day and every night without fail.  You also know by now that my tolerance for this is extremely thin, verging on non-existent.  Notwithstanding innocent goof and human blunders, somewhere in the chaos one has to actually SEE the damage being done.  "I" see the damage because I'm a recipient of most of it, but T sits quietly on the river "Denial" and refuses to move.  Ok.  Whatever.

He doesn't like my bluntness and doesn't want me to say aloud the truth that threatens not only to completely destroy this relationship, but the truth that's destroying my peace of mind, health, and happiness.  He's in blissful ignorance, so I don't have any choice other than to say exactly what's on my mind.

When I'm trying to open a discussion, when I need to point out behaviors in someone that TRULY need addressing, I use non-combative phrases.  I speak of how I feel, what the harmful behavior is, but I don't point fingers, name-call, label, etc., because that approach causes damage as well.  I know how to communicate, as long as people allow me to communicate.

Repeatedly disrespecting me is a huge deal and would be for pretty much anyone.  Not allowing anyone to disrespect me was a lesson only recently learned, so I'm still a little awkward with it and finding my balance and strength when approaching the subject.  I'm getting there.  Now, in the process I've become fairly blunt when I've taken all I can, and all PC is out the window.  I speak my mind now while doing my best to preserve the other person's (in this case T) self-esteem.  I've no interest in becoming what I most despise so won't allow myself to go there.

T believes that when I point out what he does that hurts, offends, and disrespects me.. that it's a form of disrespect and that I shouldn't say anything at all.  But I assure you, that approach NEVER works and is, in fact, quite harmful to relationships and the individuals.  If I shove down my feelings, ignore the disrespect, and take the punches in silence... I will eventually resent that person, and that person right now is T.  No matter how I try to explain this--he doesn't get it and shows no indication of trying to understand or stop the disrespectful behavior.

Again, as I've said many times before, I'm not trying to make T out as a bad guy or to demonize him. He's NOT a bad guy--he's just blind to the things he does and doesn't do that greatly and adversely affect me in so many ways.  I hang in there for the obvious reasons, and I do so because I hold hope very close, hope that he'll see what he's doing so it can be stopped.

I may be a bit foolish for relying on hope this way given my past experiences and hope-filled failures.  But there's no reason NOT to hope.  In fact, hope is the great buffer of all things, isn't it?  Life tends to slip apart when hope is lost.

Damage control: There's been a lot of this with most being unsuccessful.  And I'm no stranger to damage control given past relationships that left me holding the weight of fixing everything.  One person CANNOT fix a relationship, nor can one person break it.  If a relationship is going bad, guaranteed there are TWO people at fault, even if it's the behavior of one and the acceptance of that behavior by the other.  It takes two people to break a relationship and two to repair it; an absolute truth.

Sometimes there are victims, yes, but 'most' victims are willing.  Meaning, when you have a way out of a bad situation and don't get on board with preparing things, and if you stay and suffer the damaging consequences.. then you've willingly participated in that damage.

As for me, I was a willing victim.  I played the martyr in love more times than I like to admit.  My role in a past relationship which did a LOT of damage to my self-esteem, body, etc. I take full responsibility for.  I remained in a bad situation, and though I believed that he and I could fix things I refused to see and acknowledge (for far too long) that the weight of that burden was planted fully on me.  I should've left at the first sign of serious problems.

I should have bailed when the relationship began changing the way I saw myself, how I thought of myself, when it began to depress me and fill my entire world with anxiety.  I should have been my own best friend and stood up for ME.  Instead, I did everything I possibly could to change into the distorted version he wished me to become.  It doesn't take a genius to understand that my acceptance of abuses, be they emotional or physical, would nearly destroy me as a person; I get it NOW, but I didn't get it THEN, not until it was too late and the damage was done.

I had to forgive myself more than the other person, because it was ME who let myself down.  I didn't have my own back, and I allowed everything till nearly the end.  It wasn't until I had a TIA and ended up in the hospital (very shortly after the last blow up) did I realize to what degree I'd been beaten up inside and how it had shattered me.

In the hospital the doctors asked about my level of stress, had I been dealing with major life changes such as a death in the family, financial hardship, and/or a breakup.  That was the first time the lightbulb went on and I began to introspect as I lay in that hospital bed with nothing but the hum of the heater to interfere with what came to me.  The realization was harsh, brazen, and shattering in its truth.  I had to get out of the relationship; I had to let go; and I had to do it to save my life.

This wasn't a comfortable awareness when it came blazing out of the deep recesses in which unpleasant things go to smolder.  But there was nothing I could do, really, but allow it into the light and face what it was, what I'd always known but refused to acknowledge.

So the burning question for most people at this point, after hearing/reading about my experience, the question everyone I knew at the time had is: Why the hell did I stay so long?  I stayed because I was in love with him.  Isn't that why any of us stay in bad or toxic relationships, because of our feelings and our sometimes misguided hopes that he/she will change?

I wouldn't find out until much later, until it was far too late and the damage was taking over my life and destroying happiness, that the person I fell in love with didn't really exist.  If you've read my blogs for a while you've heard me say this, and that's because the realization that I fell in love with a lie is profound and one I struggle with today for obvious reasons: You can't say goodbye to someone who doesn't exist.

The mask slipped and I discovered the truth beneath.

To this day everything about me struggles to reconcile who I thought I loved with who I was actually dealing with.

I believe that this problem of irreconcilable truths, for me, is fanning the flames of what's happening in the current relationship.  While I knew this was a possibility there wasn't any reasonable way to prepare for the experience itself.  On one hand being protective is necessary, but on the other hand.. always being poised in defense isn't a good idea either.

This emotional struggle could end with closure; something I will never have.  I can't say goodbye to someone who never existed, now can I?

Yeah... and therein lies the biggest problem of all.  This fight, this struggle permeates day to day life.  T's disrespect, whether purposeful or accidental permeates day to day life.  Health problems worsen and take over day to day life.  There seems to be no end to this....

Because I Can.

It's inevitable, isn't it?  Social networking is like trying to have a picnic beneath a buzzing hornets nest.  We know the situation is precarious, especially when so many have now succumbed to chronic butt-hurt, and yet we persevere, post to our little heart's content, and laugh at the wrath some things inspire from unstable people.  We try to understand, and some will try to edit what they post in order to 'keep down the drama.'  Thing is, the drama is on their side, not ours.  I mean, getting bent out of shape over what someone posts is a lot like being offended by the furniture in your neighbor's house... and saying so.  It's rude, and it's inappropriate.

So why do people do it if it's just going to stir up trouble?  Well, the answer to the question is in the question itself.  Some people are addicted to drama, and you can spot them readily because they'll be the ones complaining constantly, and in their passive/aggressive manner, about everyone else's "drama."  I know you guys have seen this.

I'm always a little amazed, watching them melt-down, lose control, judge others for speaking their minds, all the while trying desperately trying to blur the line between 'victim' and 'bully.'  Know the type I'm talking about?  These are the people who will call you an idiot while claiming they're above such behavior.

It's perplexing.

Here's the thing: Social networking doesn't come with a carte blanche card to attack other people's views, etc.  You have a choice to keep going if you see a post you don't like, and most stable, intelligent people will do just that.  And yes, there are exceptions, such as someone outright attacking, bullying, posting personal or sensitive information about you, etc.  I mean, by all means.. call them out on it if they do that, and be sure to block their sorry asses when you're done.  Nobody likes a bully.

Now, you also have to practice what you preach.  I choose not to comment if I don't like something, and I refrain when possible the urge to behave in passive/aggressive ways.

I personally don't believe we should censor our speech just to make other people more comfortable.  DO know that I'm NOT including bullying in this, because that will NEVER be okay.  Not ever.  But outside of bullying, we can say what we want, given it's within keeping with said SN TOS.

My personal experience in this current political climate has been that the chronically butt-hurt come out in force when I post something that isn't in keeping with their own views.  One person in particular has taken to some very nasty commenting on posts he doesn't agree with, and often it's simply posts in support of who my chosen presidential candidate is.  Now why would anyone have to vomit nastiness on a positive post?  Who knows?  Who cares?  My posts on my page aren't open to bullying and nastiness.  I will either delete your posts or block you.  Enough is enough.  For the record, I've not yet blocked this other person, but that could change quickly after today's nastiness.

When has free speech turned into 'free to bully'?  I don't have the answer to this question either, but maybe it's more a rhetorical reference than anything else.  Either way, some people really don't understand how stubborn I can be when it comes to another trying to control what I do, how I think, how I feel, and so on.  Yeah, I can assure you.. you really don't want to poke the bear like that.

Bullying doesn't work on me, and you'll find quite the opposite response than what you hope for.  But then, I think these types of drama queens actually WANT the drama, which is why they spend SO much time tossing insults.  Why else would they do it if that's the only payoff?

So today this person went on a rant, tossing in character assassination remarks and such, and quite a few at that.  But the main complaint is that he didn't want to see political posts and actually stated that if you're posting more than 2-3 per day that your friends are "Fucking sick of you."  Well, what he thinks was a clever cut down and shaming tactic I see only as a challenge, and one I accepted right off.  Today is going to be a day when the political posts will continue.. all.. day.. long.

I don't give in to bullies, who are really just cowards anyway.  My page, my posts, and anyone who doesn't like it can click the 'unfollow' or 'unfriend' button!  You can't bully me.  You can't censor me.  And you can't control me.

Challenge me, and you may be surprised at my response.  And remember, you can't un-ring that bell.

I also practice what I preach: if I see a post I don't like... I move on.  Having the restraint to NOT react is empowering, because when you do as that other person did today you show weakness, an inability to control your own emotions and behavior.  Why would anyone willingly do that?  There are venues outside of social media to air your grievances if needed.  Hell, I have blogs where I can speak my mind and get things off my chest WITHOUT drawing attention to the person I may be talking about.  Having been at the receiving end of abuse and character assassination I choose to refrain from going down that road if possible.  But I assure you, I'm NOT afraid to stand up for myself; that's a completely different thing altogether anyway.

As they say... haters gonna hate. ;p

Cross-Post Rant Ahead.. "I'm DONE"

Trust me when I say... it's taken me from approximately 7:20am to 10:37am JUST to calm down enough to write.  Waking to indifference each day is grating on my nerves and sucking the life out of my life.  I'm not in the greatest of moods at the moment, and I'm not about to pretend I am.  It's been one HELL of a morning... let's just start there, shall we?

Okay, so all of my life I've believed that the old saying "Anything worth doing is worth doing RIGHT" is a damn good foundation for anyone's life.  Half-Assing ANYTHING reveals a lot about a person.  And by 'half-assing" I mean not putting everything you have into what you're doing.  Not to say your "everything" may not be on the same level every day, but putting in 100% of what you can is all anyone can really ask.  And why not?  Why would anyone do anything less than 100%?  When you take shortcuts you leave someone else to make up the difference in distance you weren't willing to go.

NOTE:  As always, unless I'm writing something aimed at someone in particular... the word "You" is used loosely and not meant to point fingers at anyone here.

My health is bad--I've spoken of this a lot in my blogs.  Dealing with one confirmed AI disease (AIH) and going through the paces of confirming a second means.. I'm NOT in remission.  I won't BE in remission for a very long time (I'm told).  The blood work COULD very well improve, the numbers will improve and possibly quickly, but 'remission' is more than numbers.  I won't go into all of that, but suffice it to say every single day is a battle to get through.  So here I am living with someone who, by nature, does ONLY what he can get away with and not a scintilla more.  What does this mean?  It means I have to take up the slack.  I not only have to do what I need and have to do, but I have to take up the slack from what he only does PART-WAY.

Half-Assers are a HUGE pet peeve of mine!

Look, I realize there will be days, times, and situations where you may have to take a short cut or do what you can in that moment.  But I also know that there are things that HAVE to be done correctly, thoroughly.  I mean, you can only short-cut your way through things until you end up with a completely and totally chaotic mess that SOMEONE ELSE will ultimately have to deal with.  Why the hell would you do this to someone, especially someone you claim to "love"?

This morning, like so many mornings (every morning!) I found myself forcing my way through cleaning up after T.  And I mean, cleaning up as in it takes me some 45-hour JUST to pick up the slack of his half-assed whatever.  Have I spoken to him about this?  Of course I have, and 2 years ago, when it really began, I was very calm, loving, and discussed the matter with him in hopes he would see what he was doing.  I mean, he's a grown up, and I'm not his mom.  He can pick up after himself, because he's no Ward Cleaver and doesn't treat me like Joan.  The family of the 1950's and 1960's are GONE.  Marriage and relationships aren't centered around women being in servitude.

Now, women who are treated with respect, treated kindly, appreciated.. will do almost anything for their guys.  It's how we're wired.  We're wired to be caretakers, caregivers, at least most of us.  However, when taken advantage of we often will begin to back off from all those things we once did easily, eagerly, and happily.  When taken for granted... we don't see any reason to continue giving when there's only taking from the other side.

And please, don't confuse this 'give and take' with material things or money, etc.  Because those things don't bring happiness, not ever.  What I'm talking about here is doing one's part in the relationship without placing the blinders on and thinking it's really just all about the other person doing all the work.

I've been in a relationship where everything was dumped solely on my shoulders.  People who know me, who pay attention, find out quickly that I can't be bought.  You can't buy your way out of unhappiness.  You just can't.  Being poor and happy is FAR FAR superior than being well-off and miserable.  Money can't get rid of unhappiness.. I really can't stress that enough.

Doing your part, that's what it's about.  Not placing necessary pressure or expectations on the other person is what it's about.  Respecting the other person's time is what it's about.  And soooooo much more, or course.  But when it comes to half-assing your way through chores because you know the other person will take up the slack for you... that's a sure-fire way to turn that person off, long-term.  And good damn luck getting them to be turned on again.

Being taken advantage of is not good foreplay.
Being taken for granted is not good foreplay.
Doing and not doing things that make the other person's life more difficult.. is not good foreplay.
Being overtly, blatantly lazy isn't sexy.
Indifference isn't sexy.
Ignoring someone isn't sexy.
Not respecting the other person's space, time, and needs isn't sexy, nor is it good foreplay.
Being mean, hateful, abusive.. isn't sexy, and it makes for LOUSY foreplay.

You treat me like shit, I'm going to shut down.
You abuse me, mentally, verbally, or physically.. and I'm going to shut down and NOT be into you.
Take me for granted and I'll stop doing things for you.

It's taken me years to get to this point, and I've been a welcome mat for a couple of people and won't ever allow myself to do that again.  I don't need anyone THAT much.  If I'm treated badly, eventually I won't feel anything at all for you, and you're going to find out that you really just can't un-ring that bell.

You can't buy me or my love.  I'm not for sale.  If you do something you claim is out of kindness or whatever, and you use it against me later.. you've given your true motive away!  Once I SEE you, what and who you REALLY are, I won't be able to see that 'other' person ever again.  Once you blow it, you blow it.

T is lucky in that there's still about 2% hope here.  This morning was just about the final straw, but I fought and worked my way past it, and I'm telling you it was DIFFICULT!  He knew, too.  He knew the moment I pointed out to him what he'd done.  He tried to backpedal, tried to reassure himself that he'd not blown it VIA me.  But what was done was done, and the disingenuous nature of what he did wasn't lost on me at all, and it broke something inside and change, again, the way I see him and feel about him.  Being disingenuous is exactly like lying, and I'm DONE being okay with men who lie to me, either by omission or right-out.  DONE.

That 2% of me that is still open to his finding a solution and fixing the whole disingenuous thing is stretched very thin.  He's running out of time.

Honesty and respect are MORE important than love.  My last relationship taught me that, opened my eyes to the fact that without those first two things.. LOVE CAN'T EXIST!  Love CANNOT exist in the absence of honesty and respect.

Besides struggling through a VERY PAINFUL morning trying to finish half-assed attempts at whatever, I also had to deal with the tuning me out thing, the thing where he pretends to vaguely respond because he knows he didn't hear a thing I just said.  No matter... I don't repeat myself anymore.  I do let him know, however, that I get that he didn't hear me and that all the begging in the world to repeat myself isn't going to make me do so.  After a year or more of this not listening/tuning me out thing.. I've grown intolerant to it.  I've told him that, fine, if he's that disinterested in what I have to say then I'll simply 'tell someone who gives a shit.'  He doesn't like it, but it's no longer about what HE likes and doesn't like anymore.  I've taken the first step in getting MY life back, replacing the disrespect he shows towards me with my own SELF-RESPECT; something I really should've done a long, long time ago.  Better late than never, I say.

So this morning was NOT a good morning.  But I'm going to spend the remainder of my day taking care of myself, focusing on what I can do to help myself heal, and incorporating those things that will protect me from further harm from anyone, especially from the person I'm living with.  Yes, I still have to work through the damage from the past relationship, but that's already underway and will help with my current situation.

Well, that's where I am today.  It will get better, and I will keep persevering... as long as I can.

Autoimmune Hepatitis, Myositis, My Life

One more appointment out of the way.  One more trip to the lab to get more blood work.  More talk of a secondary AI disease (Myositis), and discussion of Paroxysmal Muscle Weakness.  All in a day's work, right?  All joking aside, it's just movement in the same direction, albeit slowly but surely.

Getting from point A to point B is mind-over-matter now.  The excruciating pain in my lower back I'm told isn't electrolyte-related and is part of the "Myositis" issue.  My Hepatologist, if I understand correctly, can't make that diagnosis definitive, as it requires a rheumatologist to do so.  This can be very difficult, however, unless one is lucky enough to find a rheumy doc who is also a D.O.  Now, I won't go into the whole 'what is a D.O.' thing here because it would just take too much time.  What I will say is that I prefer D.O.'s over the average M.D. because their D.O. training means they're trained and take the stance of... looking at the whole person, rather than the parts.  In other words, they look at the big picture.  My GP is a D.O., and every specialist I have to deal with I tried to choose based on whether he/she is a D.O. (such as my cardiologist).

Mind over matter, literally...

I have to WILL myself through every step I take now.  The muscles in my lower back literally LOCK into place the second I stand, preventing walking in a normal way... or sometimes walking at all.  In other words USING those muscles is almost out of the question.  The leg weakness, the arm weakness, I'm told, is also due to the AIH and most likely even more to the myositis.  Myositis is not something anyone wants, trust me, and I'm not sure where it will end.

Geting a definitiv diagnosis isn't really going to be so easy.  AI diseases are complex, and many of them have to be, in part, a diagnosis of exclusion, though not always.  Many autoimmune antibodies aren't found to be present in about 20%-25% of people with AI disease, and the other factors are sometimes hard to catch.  When someone spontaneously goes into remission... that makes it more difficult.  With aldolase levels elevated again, with the problems with the muscles in my back, etc... it could be easier to get a diagnosis.  Not sure.

Eventually, the Aldolase levels could normalize and stay there, though myositis could be rampant.  The reason for this is that Aldolase will decrease as muscle tissue is destroyed, so it's not the most reliable predictor for severity or even presence of the disease.  Where I'm lucky in this is that I'm being treated for Autoimmune Hepatitis, which includes Imuran/Azathioprine... which is used to treat myositis as well.

"You're Aldolase is elevated AGAIN.  And THAT'S while you're on prednisone and Imuran!  Imagine what it would be if you weren't."

He's right, of course.  The Aldolase levels are elevated but still somewhat lower than before treatment.  Maybe we can stop the destruction of muscle before it gets too bad.

So what am I to make of this?  Don't know.  Just waiting for the definitive diagnoses so focus can be shifted solely on getting these things in remission.

Prednisone tapered another 5mg, Imuran from 50mg/day to 150mg/day.

This is where things get risky.  I can't get a cold and need to avoid situations where infection can happen.  With my immune system suppressed to this degree, even a cold can land me in the hospital.  So precautions must be taken, and I have to pick and choose where and when or if I go in public and take precautions accordingly.  I have to stay clear of sick people at all costs.

I can't do a flu shot until I'm off the prednisone, so that will complicate things further.  I SHOULD have gotten a flu shot weeks ago, but I had no idea I would need one that badly.  Lesson learned.

Bottom line today is that I'm forcing myself to sit here at the table, to type, to keep on keeping on without succumbing to the call of the couch.  Yeah, I would like nothing better than to completely veg out on the sofa... or crawl into bed for a long nap.  I have no idea what I'm to give in to.

My next bout of research, though I've done a little preliminary, is to see what I can and cannot do with regards to exercise given that I'm most likely dealing with myositis.  The commercial grade (gym quality) exercise bike arrived yesterday and isn't put all the way together just yet.  No biggie... it will get done, and I need some time to figure stuff out.

OMG... I'm so tired, my muscles ache.  But I think this may be due to the increase in Azathioprine.  Boy... am I in for a rough ride, I think.

Signing off.... for now.....

Family--Beating My Head Against the Wall

To say I come from a dysfunctional family is putting it mildly.  Further back than my own memory reaches my siblings have hated me.  No, really, I'm not making this up or being dramatic.  I don't talk about this much because it brings a lot of sadness and discomfort, anger and resentment rushing to the surface.  It's a long story, really, and one with gaps and holes and far-reaching voids where many memories have vanished.  It would be oh so much easier had I been adopted, because I know virtually nothing about my family tree, for all the asking I've done over the years, and my parents are both deceased with my having absolutely NO idea where I came from, who my ancestors are, or what my connection is to any of them, if at all.

I was a "Mistake," according to my mother.  Now, my relationship and experience with my mom is a story in and of itself, and honestly... I could write a novel here about that.  But I'm not going to.  Let's just say my mom was disconnected by the time I was born, old enough to be my grandmother, and about as unplugged as a parent could get.  It was easier to micromanage and control everything to a damaging degree, rather than create experiences that may have given me a chance and coming out on the other side with less 'issues.'  Yes, of course I have issues, and in a way it was my mom's only legacy.

How is it that I could know little of nothing, if anything, about anyone in my family tree?  Well, that's easy--when you don't answer questions, share nothing, and ensure that not a single photo, letter, information, etc. gets passed down to you... well, you can't ask a dead person questions.  Point blank, not pretty, but absolute truth just the same.

Everything from health/medical information was shared primarily with ONE of the 6 children, and I wasn't the one who got the information.  My eldest sister was my mother's confidant, her go-to gal, and there was an almost too-close relationship between my mom and my oldest sister (old enough to be my mom).  I spent my entire life on the outside, looking in, and it was that way until my mom passed away (over 20 years ago now).

One sister and I shared a dad, and my other siblings share a father form my mom's 1st and only marriage.  Yep, my other sister and I were illegitimate.  I could really care less about that, to tell you the truth.  My dad was out of the picture when I was 18 months old, and my mother really never spoke of him or his family except for some really scary things, very dark and scary things.  Now, it shouldn't surprise anyone that if you scare a kid like that, they're most likely not ever going to ask too many questions.  This was the case with me.

The siblings who had a different dad hate me.  Just the truth.  I was even told that one reason they despised me was that, because we were very poor, they often didn't get as much milk (the example used by one brother and sister) because when it came down to the wire... "The baby" (me) needed it more than they did.  I can't speak for what happened when I was a baby.  I can't apologize for something that I didn't do on purpose.  Yet that resentment carried right into adulthood for my 3 brothers and one sister.  BTW, I don't really think of them as brothers and sisters because they've not treated me as such throughout my life.  What memories I have of life with them.. isn't good.

I was born very late, with my mom being in her early 40's when she had me.  All my siblings (but for one) was grown and gone and with kids of their own, so I pretty much grew up like an only child from about age 10.. when one of my sisters married and moved out (she was 16).  We lived in a 3 bedroom house that was eventually condemned, and my mother (a hoarder) used all 3 bedrooms as her hoarding rooms.  My sister, the one I share a dad with, had her own room, lots of 'stuff,' decorated walls, record player, records, clothes, and a bike.  I didn't have enough toys to even have a toy box, so even in this respect I would find myself living an entirely different life than my sister... and everyone else, actually.

My mom was absent, indifferent, cold most of the time...and even cruel.  Skipping over more details than will fit here, I will say that my childhood was very, very odd, and the damage done has proven to be long-lasting.  Still, I spent my life longing for a family, a REAL family.  Now, coming from a family with 3 brothers and 2 sisters you would think that a strange thing for me to say.  Aunts, uncles, cousins... really had nothing to do with me, but for one cousin who, I guess, simply took pity on me.  I felt the hostility from them all growing up and didn't understand any of it at all.  I felt it, saw it, heard it, and experienced that hostility until we moved away from California.  We moved to Colorado because my oldest brother wanted my mom to move there so she could babysit while he and my SIL could work.  I was in 8th grade when we moved, and my life didn't get better at all.

Longing for a real family... even to this day....

I would eventually move away from the state of Colorado.  My kids and I, to make a long story short as possible, ended up here in the south along the Gulf Coast, where we settled into that strange place (strange to us because we weren't from there) and would end up calling the south "Home."  It's the only place that ever felt like home to me.  I'm still in the south, but a little further north by a few short hours.  But back to "Family"....

When my mom passed, naturally my eldest sister got everything.  Very important items my mom was holding for me until I could send for them were divided amongst my brothers and sisters and nephews... or just tossed out as garbage.  They did this QUICKLY after my mother died, the day they found out, using the excuse that they were sure that since she was on disability, got a veteran's widow pension, and on Medicare, etc... that the 'government' was going to come in and take her stuff.  Yes, LUDICROUS, but that's the excuse they used.  And when I arrived for her funeral I wasn't even allowed to so much as have a photo of hers.  My eldest sister 'allowed' me to take ONE photo to have it photocopied.  My mom had boxes and boxes of photos, btw.

Few actually had anything to say to me at the funeral, or after.  It was the same shit, different day.. only worse.  A few years later I'd tried once again to make some kind of connection with them, but it ended in a total disaster.  I finally came to my senses and realized that I was the only one putting in any effort and that it just simply wasn't worth it.  I basically told my oldest brother and his bitchy wife to piss off.  And yes, it felt great and was LONG overdue.

In the present....

I know pretty much nothing of my family history, my family tree.  My last living grandparent died when I was 2 weeks old, and everyone else was so much older than me that no one really had anything to do with me.  My mom wasn't really forthcoming with names, histories, etc., though she did incorporate some names and such in a few fun stories she would tell from time to time.  But as a little child I really had no idea if she were making the stuff up/telling fairytales, or if the information was actually true.  And after my mom's death... the information about grandparents and such were simply not given to me, even if I asked.  Photos, etc.... all given to my sister, who claimed some neighbor stole them, were lost.  My brothers, etc. chose badly when they decided to give my sister everything.  One person said they thought my sister pawned or sold the framed antique photos of grandparents etc for money.  Sadly, it sounds exactly like something she would do.

The cruelty extends into adulthood....

When one of my brothers passed away a few years ago I was told about this AFTER the funeral had taken place, and... I was told on Facebook by a distant cousin.  She apparently looked for me on Facebook with ONE purpose in mind, and that was to send me a message that read.. "B**** passed away last week.  Thought you'd like to know."  I asked "How/why?" which lead to her replaying in the same short, blunt fashion. She then disappeared and didn't say a word ever again.  I'd written back a couple of times.. with no response.  I'd written my nephew as well, and have been ignored.  And this nephew I grew up with and was very close to most of our lives.  He's only 2 1/2 years younger than I am.

Cruelty was their favorite weapon, and continues to be so.


The family tree...

As someone who feels completely disconnected from 'family' or blood ties, history... it only stands to reason that I would, eventually, WANT to know something about my own family history.  SOMETHING.  ANYTHING.  So when I decided to look into www.ancestry.com I felt like I was taking a step in the right direction.  Maybe this site could help me put the broken pieces together in such a way that I would at least see my connection within the bloodline.

What I've done...

I created an account at www.ancestry.com over a year ago, but since I wasn't really willing to invest any money into getting a full account, I've only spent the smallest bit of time there.  But that changed for me about a week ago when I saw a commercial online for Ancestry and a DNA test they offered that shows where your bloodline is from, at least in percentages.  A lot of folks have jumped on board for this.  Now, one cool thing about the DNA test and having a real account (which I don't yet) is that you can set your family tree to allow links between matches for DNA, region, etc.  It's a lot more complicated than that, and they have a video that explains it all, but it's a really neat tool and a good place to start.  But what about for someone like me?....

DNA results may be the only thing I really get out of this, and that's okay.  It's something, isn't it?  It would be nice to know for sure what ethnicities are involved in my family tree, even if I don't have any family history to see how the pieces fit.  I sent my kit off today and, from what I understand, it will take about a week for the results to get uploaded online.  Knowing it's not going to give me complete picture of my family tree... I'm still okay, and I'm fairly patient where that's concerned.

So what's my freaking point here?

My point is this: If you have information about family history (names, places, etc) please share them with your kids.  Don't leave them in the dark to spend the rest of their lives wondering who they really are (history wise), where they're from, what their history is, etc.  It's really not a good or easy thing to live with when you have no idea about those things.  Don't do that to your kids, seriously.

My desire to know more about my family history/ancestry runs deeper than the hurt from the disconnection from my actual 'family members.'  I rarely use the word 'family' when speaking about them.  They're blood relatives to me, but nothing more.

I have to wonder if I'm beating my head against the wall trying to piece together a family tree I know nothing about.  Names, birth dates, etc. are required to even do searches or make connections.  What little information I have really just stops at my mom, and my dad I have only a name and birth date.  It's really like hitting a brick wall.  But is it worth it, all of this effort?  I don't know.

I really just don't know.  The one thing I DO know is that I'm left with the question: Will I ever fully understand myself in connection to history and ancestry?

*shrugs*

Healing

Having some Saturday alone time is a rare treat for me, and I call it a 'treat' because the weekend vibe as it is in my life right now is different than it used to be.  Being stuck indoors all day, every day, because of health issues is less than optimal for a happy, health life, and definitely not too good for a healthy body and mind.  Still, I make the best of what each day gives me, even on those days when I'm brought to my knees by symptoms and issues I can do nothing about.  Alone time is the time when I decompress, and it's an absolute necessity.

The minutes are ticking away as I type this, meaning the minutes I have in the peaceful quiet.  So why am I spending this time typing in my blogs and doing mindless things like surfing the internet?  Because I CHOOSE to.  It's really the point, isn't it, to make our free time what we want.  Of course it's the point.

One more cup of coffee.  A few more minutes of peaceful stillness and quiet knowing it will change in roughly 45 minutes to an hour.  I'll take what I can get and use it for whatever I want.

My world is colored in shades of white, green, blue, and cheap, durable tile; something many hospitals and clinics have in common.  So sitting in my own space where I'm surrounded entirely by NON-medical-related decor, sights, sounds, and smells, I can improvise throughout the day depending on what is often the unpredictability of living--at least in my life anyway.  I can predict nothing, so I expect nothing, and I allow everything.  On the surface this sounds risky, but I promise you it's not.

I long to have the strength and stamina, to be without pain long enough to continue to create my environment in such a way that it promotes healing.  REAL healing.  Not the medicated type of healing, but real healing.  While I know and appreciate what the medications are doing to save my life, even to promote a better quality of life (leading to), I'm well aware of the things that have yet to be addressed.  Back pain is now the front and center of my days and nights and all I can do is ride it out until someone discovers what's causing it.  Exercising patience is difficult in the face of chronic illness and pain, but it's necessary.

While the overall chronic pain began to cease with the addition of prednisone, something else is revealing itself at the same time.  This, like everything, happens for a reason, so I understand and accept that this is a message of some kind, the pain being a warning sign that something is still amiss.   Healing will come when the answers come.  I just need someone to ask the questions now.

What's left of my quiet morning will end soon.  T will come home and things will change, though it doesn't really have to be for the worst.  If he would just tune-in, plug-in, and open his eyes... I think things could go a bit smoother than they have.  I can't open his eyes or make him listen or to be aware or anything at all.  It's up to him, ultimately, to plug-in or not.  I have to focus on wellness, healing, and regaining my strength, vitality, and even my passion for life, for being alive.  Unless you've lived with chronic pain, with a chronic illness (even if you didn't know you had it for a long time), you probably wouldn't understand any of this.

But I understand all too well.

I'm glad my morning was quiet and still.  I'm grateful to have had that today, even if for just a few hours.  I'll relinquish that quiet to the busy life of living with another human being, because I have to, because it's necessary, and because I should.  I won't say I 'want to' because what I really want is to not have to relinquish peace, happiness, tranquility.  No one should have to relinquish the better part of being, should they?  I don't believe so.  But I will today, and I will tomorrow, and I will next week and so on until T takes the time and initiative to work through some things that are completely destroying having a peaceful life together.

Do I long for the days when I lived alone?  Do I miss the imperfect peace I once had as a single person?  Yes.  I absolutely do.  It's FAR easier to live alone than with someone.  But easy isn't always best, now is it?

I want best, not easy, but at the same time I also believe BOTH can exist simultaneously.

Reaching the bottom of the coffee cup as the second half of the day looms ahead.  So much to do, so very much to do.  I'll miss the peace I've had the first half of my day.  Tomorrow my exercise bike will be delivered, and the office/exercise room needs attending to make ready for that delivery.

I really will miss the peacefulness of this morning.  I really, really will.

The Dangers of Being Honest

Honesty has become a vulnerability.  People who speak their minds honesty are often faced with ridicule and contempt by those who have opposing views. I believe most of us get this and have experienced that ridicule first-hand.  While a valuable lesson, that ridicule and backlash, while it reminds us how we should choose our words carefully, we must always remember that honesty is STILL the best policy, and that lying by omission... is STILL lying.

A friend who reads all my blogs, and I mean every entry (bless her heart), sent me a message and said, "I don't know how you do it. Aren't you scared of haters bashing you?"  Well, no.. I'm not.  I refuse to allow haters and bullies to dictate how I think, behave, react or don't react to any given situation.  I mean, once you give away your power it's really hard to get it back.  It's best not to give your power to another to begin with.

I've relinquished my power to haters and bullies in my past.  My entire life, up until about 3 years ago, I learned to suppress my feelings, to bury anger deep, to hide the foundations of any feelings I had.  Not to say I wasn't emotional, because BOY was I ever.  I wore my emotions on my sleeve for the entire world to see.  But when it came down to recognizing for more than a second what created those emotions, and when it came down to standing up for myself, that's where everything fell apart, and it did so because I was taught early on that having those emotions.. was a bad thing.

I no longer think that, and because I no longer think that I FEEL more intensely those emotions I used to keep in check to the point of denial.  It's been a liberating process, being able to access feelings like that.  I don't have to apologize to anyone for having those feelings, and I reserve apologies now for when I HANDLE those feelings badly; thankfully this is seldom an issue.  So when someone writes me and is worried because I allowed the emotions and thoughts etc to flow freely on the pages here, or in my other blogs, I DO take into consideration what they're saying, but I also take into consideration that I've come a very long way to not only reach my feelings and access them more fully than before, but that it's MORE than OKAY to express them.

There is a danger to being honest.  There's a danger in speaking freely at times.  There's a risk that you won't please one person or another person, etc.  Not everyone is going to like what I'm saying.  But so what?  There will be those who DO, and it's with those people that the unspoken camaraderie is expressed and felt.  What I say, what I express, actually has helped people, and it's certainly helped me.  So I've no intention of changing this, just so everyone here is clear on where I stand.

I will accept the dangers of honesty and continue to be honest, sometimes bluntly, and I will take into consideration the edges honesty has by definition.  I'm not out to hurt anyone, and this is why I name NO names here as to whom I'm speaking about.. IF I'm speaking about someone else.  It occurs to me that having to say this means I'm still aware, very aware, of the risks I take.  But it doesn't matter.. I'm not here to write fiction or make things look better or worse than they actually are.

I'm going to be myself, haters and bullies be-damned.  No one should give up pieces of themselves for others to devour, and that's exactly what you do when you censor your words, thoughts, and feelings in a place or forum where you're there to speak your mind.  People can choose to read or not read, listen or not listen.  Actions are a choice.

So to my friend, though we've spoken about this at length--I hear you.  And I'm okay.  I'm okay with what any hater or bully thinks about me, because I don't answer to them.  And.. you shouldn't either.

The Crap I Spew

Well, I told you guys I was going to do this, and I know some of you, if not most of you, usually end up having a preference as to which blog(s) of mine to read.  At least that's what some of you have told me.  The new blog, however, is just an outlet for crazy, stupid, nutty, fun, wacky-whatevers I need or want to share.  Yes, sometimes it's 'need.' ;)

Crap that enters my mind, sometimes unbidden.
Crap I think up that ends up epically cool, or total crap.
Crap I have an opinion about.
Crap I just want to share with you guys for no reason.
Crap I've seen.
Crap I've heard.
Crap I'm confused by.
Crap I'm angered by.
Crap
Crap
Crap
Crap
...and even more Crap.

It's in its fledgling stage, so hang in there as the growing pains begin.

URL:

http://thecrapispew.blogspot.com

Have fun!  Oh, and remember... all PC is out the window there, and don't be surprised if you have multiple WTF moments... eventually, it's gonna happen. ;p

Ever-Wondering Why I Bother to Give a Damn

It was a long holiday weekend filled with packing, moving a few loads over to the new house, and lots of anxiety having to be around T for that long.  I'm not being mean here, I assure you, but the magnitude in which he's "just not there" is ever more apparent when we're around each other too much.  And honestly, it drags me down and wears me out beyond words.  Not sure how I can handle this much longer.

I try very hard to be patient and understanding, but it's nearly impossible to feel those things when the other person is simply not trying at all.  I'm a ghost in my own household (notice I didn't say "home"), and the weight of being absolutely trapped is taking a tremendous toll on me both physically and emotionally.  Life isn't supposed to be this hard.

He's supposed to go visit his family in Florida next month, and no.. I'm not going.  By choice.  I'm simply not up to that long drive right now, and honestly... I really need the time alone; maybe I'll be able to breathe for once.  I'm a little scared I'll like being by myself much more than I realize.  Though it really wouldn't surprise me...as I crave space, peace, breathing room, a place to stretch these broken wings and try and remember what it feels like to fly.

...It was another weekend with my pointing out all the ways he tries to control me, how he treats me like a child, how he doesn't respect me... and as always it falls on deaf ears.  Oh, he vehemently INSISTS that he understands what I'm trying to say to him, that he gets it, that he will try harder, and so on..and on..and on..and on.  His words mean very little to me anymore, and his WORD... means even less.

I can't rely on him following through.

Honestly, I could understand his not being able to follow through on some things if there were a REASON.  But there's not.  He simply just... doesn't.  And it's very telling.

In the meantime I try desperately to hold on, to remember who I am, to remember my dreams, wishes, hopes, goals, and to remind myself that my needs matter too.  I also have to work on not being completely rolled over by him when he does this; and I have to say it's nearly impossible.  I mean, let's face it---I'm not the toughest person, and I'm sensitive to both people and environment.  And my environment right now is NOT conducive to happiness, joy, OR healing; three things of which I need desperately in my life.

How the hell did I get here?  Rhetorical question, really.  What I should be asking myself is 'How did I get here AGAIN?!'

Okay, so truth be told I'd have to say I HAVE asked myself that question and know how I got here again.  I'm not in the awful places that I've been in the past with relationships, but this one isn't healthy for me at all.  So what do I do so that I can thrive, live, and be able to breathe in my own space?

That's the million dollar question, isn't it?

And I'm working on that...

I am.  I have to.

HAVE to.

Spilling Over...

I guess I should remind some of you who may not know, that if something is bothering me particularly.. I will most likely post it in all of my blogs.  The spillover from one to the next is just something that's going to happen.  Most of the time I aim to separate what I'm talking about between each one so that the meaning isn't really lost in context.  Make sense?

My blogs overlap, though they're meant to be focused in one aspect of my life or another...

Boo's Juicy Bits:  The main aim here is health, diet, eating, all the things that support and give us a foundation for a good (or bad) life.  There's so much to this part of health, so there will be at times an overlap as to what's going on the pages.  If life is getting in the way, or helping me on my way, the details will most likely end up there as well.  And don't be surprised if you find sexually-focused chatter on there as well.   The information is all connected in one form or fashion anyway.

Where Fireflies Dream:  Created as a place for whimsical thought and ideas to play, an expression of who I am, how I dream, what I want, and the things that can or do hold me back from my greatest expression of self within my life as it is at any given point.  Again, be aware that at times topics of a sexual nature will most likely appear in posts.  Don't say I didn't warn you. ;)

This Free Spirit:  The newest blog and one I feel is necessary, even critical for me.  It's a place to talk about abuse.  Been there, done that, and still haven't gotten 100% past the damage, to say the least.  My goal with this is sharing in hopes it will help others, but also to have a place to talk/deal with the lasting effects of my experiences.  This one will often have chatter of a sexual nature as well.

All Things Ephemeral:  Originally, this one was created to let it all hang out, a no holds barred kind of place to talk about EVERYTHING in great, bloody detail.  The nature of doing this means that, in the past, I would often delete posts after a day or two, a week, a month, whatever... because it was a bit much to leave just sitting there for the whole world to see.  However, this is changing.

I will be taking that no holds barred approach with posting there soon, as it's one of the greatest barriers I need to cross in order to heal.  Like Pavlov's Dogs I learned through experience that expressing myself openly meant I would pay a price, a high one at that.  But since this is no longer the case I plan on resuming, for personal growth and healing, my once bold approach to using this blog exactly as I intended---a place for me to be free to express myself in any way I see fit!

Onward...!

Still fighting to find my bearings

Something isn't right.  "Something" hasn't felt right for a few years now, maybe since about 2012, maybe 2011.  When things break, the pieces often remain, cutting their way through the soft fabric of life.  I guess I'm realizing I was more malleable than first thought, and the strong, restraining hands of  someone I loved reshaped parts of me that I actually liked.  Not to say I'm not still in here--because I absolutely am.  Such is the part of me that fights like hell to keep me safe, protected from all the hurtful, jagged edges of what's left.  Because.. the parts of me that didn't mold to the whims and needs and demands of that person...shattered.  Where am I?

The barriers I've built around me have protected me in some ways, and they've also crushed me in others; Vulnerability is no longer something I give into.  Instead, I strive to be the strongest I've ever been, though it's not a comfortable posture for me.  So what of the discomfort, then?  It is what it is and it will remain because of my will.  It is MY will that allows or disallows what happens to me as a person, a woman, a friend, a lover, a mom... every facet that makes me who I am is ultimately at the mercy of MY will and no other but God's.  His will is ultimate, but my will is His gift to me.  And no, I'm not going off on a religious tangent.  I'm simply taking responsibility for the damage I allowed others to do to me, and also for my inability to completely regain control of the clanging thought-machine inside me that clatters on and on.

It's just one of those days sitting in the midst of one of those weeks in what I now call one of those lives...

I'm dealing with illness because of the unrest and DIS-ease I've felt for so long, with the majority of it beginning when I blindly walked into a situation I didn't want to recognize for what it actually was.  I fell headlong right into the abyss and hit bottom.  Dammit, but I should have had my own back.  I have a good understanding of this NOW and am being diligent, watchful.  And yet, contemplating what my life is now in the wake of the experiences isn't exactly pretty.  Not at all.

Nothing is improving.  My health continues to worsen, and all the tests I've gone through over the past few weeks, all of the tests I'm going through THIS week will tell me where I am in all of this.  While it may not be the best course of action on my part I will wait for the doctors to render their final diagnosis and allow them to push me in the direction I need to go.  I'm so bogged down in near-defeat that I can't seem to propel myself in the right direction.

I will let the current take me.

Above and Beyond the Beautiful: Food, Diet, Health.. or something else?

Life.  My life.  Not a single iota of it makes any sense to me.  But I am aware that there is great beauty in the world, natural wonders and love that runs deep and steady; they just don't exist in my current place in life.  Chronic pain has its effects, and when it's relentless all meaning of things once important to me slips away.  I don't include my children, etc. in this, btw.  But the meaning of my own life has turned dull and gray some time ago, and my current situation is key to holding that dullness in place, steady, and keeping me in emotional shackles.  Finding my way out of it all has become all-important.

Worrying about my current state of health isn't to say I'm scared of diagnosis, prognosis, etc. as much as I fear not being able to LIVE, to feel good, vibrant, energetic, and to reach for and achieve that which is so important to me.  It's not the ability to live that scares me---it's the inability to live well and happy.

I currently have no quality of life.

I have to decide from day to day if I have enough energy and am without pain enough to even dare to dream of the future, what I want and need in my life, where I want to go and how I want to get there. The physical pain is now all-consuming and the backdrop to every single event (few as they are).  How I get from the beginning of the day to the end is the only thing I can focus on.  How well will I sleep if at all?  Will I be able to sit, stand, walk, or lay down comfortably?  Will I be able to eat with the constant queasiness and nausea?  Will I be able to tolerate having T around me?  Will I be able to handle his indifference, self-centeredness and self-serving behaviors?  So many questions I have to answer every day and every night, and too many times I don't have answers, nor solutions, no cures or fixes, and no method of coping if not.

To be brutally honest, there are days when I know I would welcome going to sleep and not waking up.  The pain, the physical pain... is that bad, and mostly because there is absolutely NO respite from it, not even sleep.  No respite at all, not ever, not a moment.  I don't understand it, and no doctor has yet to determine the cause or find a solution.

I just have to get through today.

I just have to get through today.

....just today.

Is it my diet?  My attitude?  Will nourishing my body in a healthful way help me at all?  How do I convince T of what I need to do to get well, to thrive, to LIVE???!  Ultimately I have no control over most of what happens in my life since T came into it, and I believe it's time to put my foot down so that I can put myself first, for my health, my LIFE.  I'm not going to make it very long with things as they are, and I'm not going to heal and acquire health if I don't take precise steps to obtain that.  Why is he so resistant to my getting well????

I'll worry about tomorrow when it gets here.