Prednisone. I've now been on it roughly a month, still at 30mg at the moment and will be tapering down on Sunday. Monday is when my blood work comes back and I know if it's safe to proceed to the next upward dosage of Azathioprine. I will be going, I believe, from my current 50mg/day to 100mg/day. The goal is 150mg/day. Getting there will be interesting with all the side effects that come on at first and with each increase in dosage. And then there's the high caution I'm in right now with regards to anything flu, cold or infectious anything at all. My immune system is on overdrive, so suppressing it is critical. With Prednisone AND Azathioprine on board my immune system is winding down to a steep low, which means I have to be extremely cautious with who I'm around. I can't risk being sick.
My biggest worry--and I will get back to the diet/nutrition thing in a moment--is T. He's not careful with using antibacterials on his hands, and yes.. he washes his hands but not to the extent he needs to now that he's living with someone who's immune system is purposely being suppressed. He doesn't get it, and he forgets that he has consistently brought home colds and flu every year. Regardless of his getting a flu shot, he gets the flu and brings it home.. every.. single.. year. Colds as well. He gets over the colds and flu fairly quickly, but as of right now if I'M to get a cold or the flu... it could end VERY badly, such as in pneumonia.
I feel like I have children at home again, always reminding him to please wash his hands when in public, or after going out in public, and especially if he's around someone who's sick. I see him not doing this, and I remind him... constantly. Why can't he remember himself? Ugh. smh. I have to stop talking about this because it's extremely upsetting.
At any rate, the nausea that began yesterday continues, though not as bad. It's a gross feeling in my stomach and back of the throat, and my taste buds are completely off at the moment. I suppose this could be worked in my favor, considering. But I'm not sure due to the fact that it seems my blood sugar drops, or does something, off and on during the day, prompting me to have a snack of some kind.
No shakeology again today either. I love the taste of those shakes, especially since I had a tsp of orange extract to the chocolate, or the vanilla... it just tastes awesome. But that nudge of caution is there just the same, to be careful of what I take in. I have almond milk now, so I can do away with the dairy worry. But still...
I'm no closer to any answers than I was a week ago, and my goals are clearly seen but out of reach due to T dragging his feet on important decisions requiring ACTUAL ACTION on his part. Like the recumbent exercise bike for the back office. The bike is chosen, he just has to order it. And he's a procrastinator unlike any procrastinator I've EVER met. OMG.. you've no idea.
So this morning I remind him about the exercise bike. What does he say in response?... "I will have to measure it to see if it will fit in there." HUH? Seriously? We spent last weekend moving a bookshelf from the office to the huge dining room, and a big doll cabinet (for my art) into my art room, emptying some boxes and moving the file cabinet, etc. to make room for that bike. They don't come in different sizes, not when they're the high-quality ones for commercial use. They come in ONE size, and knowing that size we made room for it. So what's the deal?... Well, that one is easy to figure out...
You see, T isn't really much into anything if it's more than 4 or 5 inches outside his own skin. He sees things from his perspective only, and he makes decisions based on HIS wants and needs and no one else's. We were supposed to have ordered this bike MONTHS prior to moving, more than a year ago actually. Now, it's a good thing that we didn't because it would've been a total bitch to move, but this is representative of to what degree he will put something off unless it only benefits HIM personally.
I'm told to listen to my body and don't push things too much, but I'm also told to try and incorporate some exercise into my life each and every day if possible, or as many times a week as possible. T and I agreed that, for now, joining a gym would be far more costly in the long run, and it won't be nearly as effective because there will be days when I'm simply not up to driving to the gym and back. We discussed and agreed on an exercise bike for here at home, something even he could use. Now he's hedging again as my health remains in the balance.
I'm really at a loss as to what to do. He doesn't really keep me informed as to what's going on, decisions he makes, etc., which makes me feel like an outsider. And.. I'm getting off-track here a bit, I know. But his decisions are impacting my health, not HIS.
So while the wild switches between terrible nausea and raging prednisone hunger (which happens very little if at all the last couple of days), I'm left with only exercise to balance things out, and I need that bike to do it. My stamina for standing at this time is at rock bottom...
What to do, what to do? Wait, I guess, and see if he decides to ACT on anything.
I'm not holding my breath....
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