I'm going to make this as short as possible, but I vowed to make entries here so I can see where I was and when and what was going on at the time. Weight loss isn't going to happen in the midst of weight gain. Some people are very fortunate to not be on prednisone long enough, or have a dosage high enough, to cause too much damage. But for those of us who have to endure this, the hell of having to choose between what happens WITHOUT treatment for AIH and WITH isn't really a choice at all, unless you have a death wish. UNtreated AIH has an average 5 yr survival rate in many cases, and less than 8 when it comes to terms of cirrhosis developing if it's absent at the time of diagnosis. Those are ugly odds. So we take our medipoison and hunker down for a long and rough ride to remission.
Diet--meal planning--cooking--eating--and my body's reaction to any of those differ from one day to the next. And by the end of the day my body is NOT my friend. It's another day in prednisone hell and I'm not handling this well for the most part.
I can't define the excruciating back pain that came on board almost two weeks ago. I've felt it before, and it went away quickly when I received 2 IV iron infusions for anemia. So is the anemia back? Why won't any of my doctors test for ferritin again to check this? SOMETHING is causing severe back pain that even prednisone can't touch! That's kind of a big deal since prednisone is often prescribed FOR back pain! What gives? I may end up having to call the hematologist to see if I can get re-tested based on symptoms. It's a simple test done right in his office, and though the results take about 3 days to come back.. at least I'll know if low ferritin and/or iron in my blood is to blame. Because honestly, this sucks worse than the AIH symptoms.
In the meantime, I choose what I eat based on how long or IF I'm able to stand there and cook, make a sandwich, etc. Yeah, it's THAT severe.
It's just another day in my life on planet earth...
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