Showing posts with label polymyositis. Show all posts
Showing posts with label polymyositis. Show all posts

Friday, July 24, 2015

The ups and downs of a f*ckd up appetite

Not mincing words here.  Just telling it like it is.  On TWO medications for stomach pain/issues/possible duodenal ulcer, and I find that it's messing heavily with my appetite.  Well, my appetite has been affected by whatever havoc is happening in my GI tract anyway, so this isn't all that unusual.  Day to day I have NO idea what I can eat, IF I want to eat, or if my appetite will be through the roof.  Yay.  Not!

One minute disgusted by food as it hurts my stomach, and the next... no holds barred!  Ridiculous.  But I know that IF it's true that I have an ulcer, an empty stomach can cause much pain.

Does eating REALLY need to be so chaotic and risky, though?

I mean really?

It is what it is.  Go figure.

For now, I'm off to review paint samples for the kitchen walls and trim.  At least it's something positive.

*sigh*

Laters, taters....

Tuesday, July 21, 2015

Changes. Big, big changes....

To be honest, I can't post much as I've purged pretty much everything on my other two blogs (link to those are in the menu bar under "Alter Egos").  But I thought I would at least check in and talk a minute about the diet, etc.

Diet is blown all to hell and back.  The health issues make it impossible to eat low-fat or low-carb or even low-cal.  At the moment my GI specialist, whom I saw for the first time yesterday, thinks there are some major things going on... possibly autoimmune hepatitis, Myositis/Polymyositis (scary!), Duodenal Ulcer.  He's almost 100% certain that Myositis is the main problem, but he's confirming with other tests.  In the meantime, the wrong diet could set things off terribly, especially with regards to the liver.  Dieting, losing weight.. causes a bit of stress on the body, especially the liver.  Your liver has to be healthy to handle certain diets, and with the jury still out on what's what 100%... I have to sit in diet limbo, and it's almost impossible to not gain weight right now, probably due to muscle loss, possibly due to Myositis.  Aldolase is significantly elevated, and that means muscle damage (or liver issues). Doctor believes it's muscle damage due to Myositis.

Still eating a plant-based diet, no meat, and plugging along in that respect. Cannot exercise, no matter daily attempts, due to the pain and fatigue in my muscles.  I still try, no matter what.

Please check out my other two blogs for the entire discussion on this, mostly Where Fireflies Dream...

Must go...

Have a great one, all...