Monday, August 24, 2015

PART 1: While I was looking the other way.

After focusing on the liver issues and anemia and how to resolve them, I didn't take into account that anything else could be causing or contributing to my symptoms.  After my ablations last year for AFib, Atrial Flutter, and Supraventricular Tachycardia (SVT), I figured that was going to be pretty much it for heart issues.  I've had Mitral Valve Prolapse since I was a kid, and yes... that valve began to leak and is at the mild-moderate stage at this time.  I'm supposed to get a yearly ultrasound to keep an eye on things, and up till this past week it was just something I had to do.  I'm about 6 months late on this past one because the clinic I usually go to has lost 3 doctors to career move or changes, and this means my appointment got pushed months out due to the shortage of doctors.  I didn't really think much of it and decided to see if I could get my yearly ultrasound done when I went to see my EP about getting the Watchman Device implanted in my heart... at his suggestion.  I won't discuss that particular device right now because I've previously posted about it.  And I've yet to see if I can even have the procedure done in lieu of recent ultrasound findings.

Saturday (22nd) I received the ultrasound report in the mail.  I certainly didn't expect to see what was on the sheet, to tell you the truth.

I know the MVP can get worse in some people, and mine is slowly getting worse.  I also know that during my last two ultrasounds I discovered that my aortic valve was also leaking.  Well, it is what it is, and this is why I get a yearly ultrasound.

So I'm home alone and looking over the report that arrived in the mail on Saturday, and I see several things listed that surprised me...and I've listed the highlights below.  I will get to what it all means in a moment...

Left Ventricle
Diastolic filling demonstrates a pseudonormal pattern (new).

Left Atrium
Left Atrium Chamber is mildly dilated (new).

Right Atrium
Right Atrium Chamber is mildly dilated (new).

Aortic Valve
The Aortic Valve is mildly calcified.  There is mild aortic regurgitation (I already knew about this).

Mitral Valve
The Mitral Valve leaflet is mildly thickened.  There is mild-moderate mitral regurgitation (knew about this as well, with the exception of the valve now being thickened).

Tricuspid Valve
Trace tricuspid regurgitation (new).

Pulmonary Valve
There is trivial pulmonic regurgitation (new.  "Trivial" refers to the amount, but there is nothing trivial about this).

Diagnosis

Grade II/IV diastolic dysfunction.  This is heart failure.

Okay, so... there it is.  Now what?  Basically, Grade I is pretty much reversible and doesn't require treatment.  Grades II, on the other hand, requires treatment in hopes it won't progress quickly.  I have to wait to find out WHAT that treatment will be.  For some, this occurred due to high BP, but for me.. it was most likely a combination of years of having SVT, MVP, and then Afib and atrial flutter.  It's not like they can treat my HBP because I don't have that.  I may still end up on a beta blocker (hate those) to slow my HR down so it fills properly and doesn't regurgitate back into my lungs.

So yeah, there were a few new things that I learned about from this last ultrasound, none of them good.  Grade II is usually symptomatic, and I now wonder how much of the awful symptoms I've had are due to DD and not anemia or liver issues.  Something interesting that I've discovered, however, is that at night the pressure can cause RUQ pain in the liver.

Well, what do I do with this information?  Simply put, I need to get my shit together.  Exercise (with Dr's approval) is necessary, diet changes (low-fat and low-sodium), etc.  The usual.  My question is--- how the hell do I exercise when I now deal with exercise intolerance?  I guess I will have to find out.

I've been in a sort of daze since I received the news, and while I'm not really 'scared,' parts of me think I should be, because fear is often motivating in these circumstances.  Still, I'm not sure how I feel about this.  And as for T... he's indifferent, doesn't talk about it, and goes through his entire day as if I told him I stubbed my toe.  And it's not the 'I'm going to think positive' type of indifference, either.  He really has this reaction to just about everything, unless it's about him specifically.  This has been an ongoing problem of late, and it's now become more critical than ever to figure out what it all means to me.  Doesn't really matter what his indifference means to him, because he just claims he's not.  Denial isn't a river in Egypt.

So the question remains... how do I feel about this?  The answer is.. I really don't know.

It's not easy to sort through something like this without talking about it.  But who do I talk to?  No clue.  No clue at all.

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