It's About Time.

When I first began blogging it was for one specific reason--venting.  I needed a place where I could get things off my chest that were bothering me so I could get on with life without cumbersome emotions or baggage.  I had ONE blog at that time.  When things got tough, and they often were, I would visit my blog and unload to my heart's content, not giving a single iota to being politically correct or holding back out of some delusion that I somehow had to be 'polite' here.  The venting would ensue, fall upon the screen, and I would be left to bask in the aftermath of some seriously epic purging of thoughts, feelings, and more.  In the end I would usually go back and delete the long-winded and emotionally-charged entries, knowing I could do so now that some time had past.  That blog still exists and I still post in it as often as possible, and I named it "All Things Ephemeral" for a reason, even if that reason no longer exists.  Let me explain....

A few years ago I made the decision to stop deleting the entries.  Being honest with myself I realized that I was deleting so as not to 'hurt feelings' of those I vented about.  No matter that I left off names and details that would give much away to the wrong set of eyes reading, I decided it was somehow 'impolite' to share even my feelings and experiences.  Boy, was that ever stupid.  I'm glad I came to my senses and stopped editing the content over some perceived butthurt it may cause someone else.  But, did I really stop editing my own entries after all?  Well, today I figured it was something worth investigating.

I often come here and stare at the blank screen where bits of my life would fall and wonder... "How can I actually talk about this?"  I know as I write just how much I'm holding back, even when I don't WANT to.  Still, the struggle to set myself free remains just that--a struggle, even today.  Even when I know the healthiest thing I can do for myself is write about it, get it out of my system, it's remains incredibly difficult just the same.

What I want very much to do right now is to take the first step in 'going there,' to talk openly instead of using a string of allusions to piece together a story that, when all is said and done, remains unclear and ill-explained because of that fear below the surface of truth.

A Bold First Step

My next blog entry will be in This Free Spirit, and I tell you this because it will ultimately be the first blog entry in many years where I hold little if nothing back.  With failing health I need all the help I can get to break the bonds of emotional servitude, and the first step is to open myself completely to the idea of 'almost' full disclosure.

Wish me luck....

Chronic Epic Failures.

As I reach for health and healing, returning to MY life, it's not without obstacles.  If you've been reading here for a while, and reading my other blogs, this has become glaringly apparent.  So why am I STILL struggling with this?  Why is it I'm still stuck in limbo and unable to help myself?  And WHY are the obstacles STILL here?  I have to say... there's no easy way to answer those questions.

Ever hear of situations where someone is trying to lose weight, or start an exercise program (or both) and they're met with resistance from someone very close to them or.. someone living with them?  Yeah.  Well.  That's where I am and where I've been.  And now that prednisone has put weight on me I have to struggle to take care of that, because dieting doesn't quite cut it.  There's a lot of different physical mechanisms in place that thwart that.  Not that you can't lose, but it takes a lot more diligence.

I've spoken to T so many times now about not bringing home junk food and garbage food.  The junk is easy to avoid, but T's favorite thing in the world is frozen food.  Ugh.  Nasty stuff.  Okay on occasion, but for me.. it's wrecking my health beyond reason.  Too much sodium and sugar, too many processed carbs, not nearly enough veggies.  Why even bother buying that crap?

Each weekend T insists on buying the groceries.  In my current state I can't really go anywhere anyway, so I'm at his mercy.  How is it he can easily forget the stern warnings from my doctors about eating as clean as possible... is beyond me.  And not a single discussion, and there've been MANY, seems to get it through his thick skull.  smh.

So he chooses 'easy and cheap' despite the warnings, the risks, and the damage to my already compromised health.

I was told yesterday that my triglycerides are up AGAIN, and now my ferritin is elevated above normal.  NEITHER of those things are good!  *sigh*  WTH am I supposed to do?

I'm still searching for answers to this because, honestly, this is a very dangerous road to be on for me.

Dammit.

Life. Food. Oxygen. Determination. And good old fashioned letting go.

There's been a few times in my life where I had to make some really difficult decisions.  In those times it was absolutely necessary for my health and well-being to take those uncertain steps, but because I did I ended up on the right side of life... MY life.  No longer at odds with that which seeks to crush what and who I am I was free to live life the way I was meant to---my way.  It didn't mean I ended up rich or famous, it simply meant the burden of other people telling me who and how to be was no longer an anchor on this particular ship.  And it was a most beautiful thing to experience.

Sadly I find myself in that unfortunate circumstance again.  But at least, this time, I recognize the beast for what it is.  The next steps are fully mine to choose and implement.

Having been on prednisone I have to deal with the S*L*O*W process of healing my adrenal glands and waiting out the unpleasant effects.  This means being patient with myself about the weight it put on me.  All the dieting in the world can't thwart the effects of corticosteroids but at least I'm on my way and focused on what needs to be done.  I know where I am where where I need to be.  Unfortunately, T is on the opposite side of that fence lining the road to my goal, choosing to stand on the outside and basically attempting, in a passive-aggressive manner to trip me along the way.  WTH, right?

I've always been in my best health when eating clean, and that means food as close to nature as absolutely possible.  And, it's also one of the cheaper ways to eat if you're careful.  At this time it's really not about the cost of eating healthy but being forced to battle against someone who puts convenience over health.  Honestly, it's a source of utter contention when those confrontations arise, and oh but they do arise.

Fighting for my life:

In my current circumstances I find myself at the mercy of someone who literally doesn't care that eating poor quality, unhealthy food is positively dangerous for me.  Without going through the list of 'ills' again let's just say that eating pre-packaged, frozen, processed garbage (and it is garbage) is only going to deteriorate my health more rapidly than any disease process alone.  And I have to ask myself at this point---"What am I willing to surrender?"  The answer is always the same--I'm not willing to surrender ANYTHING when it comes to my health and quality of life.

Although there IS a huge part of me who's given up recently, and mostly because chronic pain, fatigue, weakness, nausea, etc., etc. has simply worn me down to the bone.  My will and determination ebbs and flows from day to day so erratically that I can't stay the course, so to speak.  Every day I find a little determination and motivation, and every day I give up.

I FEEL my body's struggle within.

My attempts to explain and convey this to T falls always on deaf ears, and this many times is where I give up and let go.  At that point what little energy and hope and determination I have recedes completely leaving me so exhausted that I have to sleep.  Many times, though not always, a short nap can restore me.  I guess just allowing my mind to cease battling against T's refusal to understand how critical clean eating and living is... well, I guess it's the only restoration method I have.

I understand full well what I'm facing here.  Even in the physical condition I'm in.. if I don't eat right, clean, healthy... I'm simply spinning my wheels.  The stress in and of itself creates and exacerbates the existing problems which also doesn't help.

What do I do when I can't drive right now (because of my arm.. possible torn rotator cuff) and can't go shopping for myself, when giving a list to T when he goes to the grocery store only means he returns with over-processed food and junk (desserts, etc).  What do I do?  These foods also don't sit well with my gastrointestinal processes (to put it nicely) and almost always makes me sick to my stomach.  I'm severely lactose intolerant, but these pre-packaged foods often have sauces in them that contain milk and cream.. NOT good at all.

I know what I need & what I must do to help myself heal.  I'm not claiming it's going to be a miracle cure or anything of the like but it IS necessary given the serious health issues I'm dealing with.

I'm alive.  I need to eat clean, healthy.  I need to exercise, to 'breathe.'  I'm determined.  But T isn't.

So at what point do I let go completely and insist on saving myself?  Why on earth is my life even up for debate?

I'm risking much by making the choice to stop taking medications, but it's critical right now as the side effects I believe are taking me out at the knees.  I have 3 more to come off of and.. I WILL.  But that's not enough.  Even I know that much.  I have to do so much more, including eating healthy and exercising even if I feel I can't.  Overall it's quality of life, not quantity.  Either way, destroying my health further from the inside out is about as foolish as it gets.

So tell me---how does one talk to someone who's deaf to reason these days?

Rhetorical question.

Chicken, fish, salad, cooked veggies, fruit, yogurt, and minute amounts of non-white/processed whole grains.  Seriously.  Is that really too much to ask???

Home.

One thing I've known for certain for pretty much all of my life is that when I'm ill, I long for home.  When I was little I knew where that place was, and despite its terrible flaws it was still home.  As an adult I was surprised to find that I no longer knew exactly where home was.  So I would spend the majority of my adult life longing for a place that quite possibly, for me anyway, doesn't exist.  I've never been able to reconcile this; not physically, and certainly not emotionally.

The closest I've come to being "Home" once moving out of my mom's house at 18 is Mobile, AL.  I had a tiny little apartment, and though not every moment there was perfect, it felt safe, and it felt like a warn welcome every time I walked through the door--no matter how good or bad things were.  It was a safe place for me to be myself, where I could decompress, where I could dream, wish, hope and feel alive.  This is not the case where I am now.  Not even close.

How did I get here?  I got here the same way I got into every bad situation in my life; By pure blind trust.  It's a flaw of mine and one that's gotten me into more trouble than I can tell you.  I give people the benefit of the doubt, take them on their word, and actually believe what they say.  Well, to a point anyway.  The thing is, that 'point' in which I pivot and see the error of my ways is usually far too late to avoid any damage to my life, and to me.

I'll probably always be this way, a far too trusting person.  I'm okay with that, I guess.  But I really wish I were better at assessing and discerning the heart and motives of people BEFORE I get involved.  We all have our flaws, I suppose.

As I wait for the sluggish process of diagnosis beyond the AIH, I'm left far too vulnerable for my liking.  There are days I can't walk well, verging on not at all, and days where lifting my arms to look at my phone is almost too much.  The weakness grows more each day and the doctors I need to see are weeks out of reach since I'll be a new patient.  The waiting is going to end me in the ER at some point, I'm afraid.  But the worst of this is being this sick and living in a place where I know absolutely no one at all.

T only helps around here bare minimum, and as the chores, etc. pile up... I long for the simplicity of the life I had in Mobile, where I didn't have to clean up after another human who refuses to do what's necessary to not live in a dirty, cluttered house.  I can't live this way, so I struggle to pick up the slack.  And I'll tell you, the slack is far far more than what T actually does.

How the hell did he survive on his own?

I have to somehow find my way home--wherever that is.  I know I can keep struggling a little bit to find my way here, to at least hang in there until I'm better---or at least better enough to survive, to move, to do something to help myself.  At this rate I don't know if I can work, which scares that crap out of me.  Disability requires a definite diagnosis, and at this time I don't have one that explains fully how I'm continuing to weaken and become more and more sick.  What can I do if even typing an entry like this makes me shaky and nauseated with weakness?

I want to be well again, to feel good again, to have energy again.  I want to be in a position where I can find my way back home again.

Home.  I just want to be... home.

The Handshake.

A relationship is like a handshake.  One person extends their hand and the other extends theirs in acceptance.  This is the best case scenario, however, and relationships leave one person waving their hand in the air and feeling foolish.  At some point that dance just doesn't work anymore and we have to decide wether it's all worth it or not.  But how do we know WHEN it's time to place our hand back in our pocket and walk away?

There's no difference in friendships and we've all seen those fail miserably due to one-sided participation.  It's not usually an instant fail, btw, and we come to the conclusion to walk away after a lot of energy is spent trying to be the one acquiescing, initiating, or taking the blame for the short-comings within the relationship machine.

So if we know how it works in friendships, why do we take so damn long with romantic relationships?  I think part of it is that there's a much larger prize at stake when it comes to that kind of connection that leaves you ultimately vulnerable and exposed.  That other person, unlike a friend (usually) has seen you literally at your worst, your best, naked, knows most if not all of your secrets, and the love and affection that ties it all together is not that easy to break.  In most cases.  Either way, there's just a lot at stake when talking romantic relationships vs friendships.

Friendships do last longer.  And if you think about it, it's most likely because you're not living with that person or trying to divvy up responsibilities, not relying on that person when it comes to the hard times.  I mean, yes, there is some of that, but again.... you just can't compare the two.  There is an exception, however, to this rule, and that is that we actually can apply what we are willing to put up with when it comes to carrying the load of that relationship.

I don't care about the numbers, myself.  Wether you call it 50/50 or 100/100 it still requires both sides to assess what's what and decide a compromise when one side is no longer able to carry the larger portion of the load.

My point here is this: At some point we have to acknowledge when something is harming us, wether it's physical or emotional harm, be it stress or overt abuse, we absolutely HAVE to make a decision at some point while we still have enough of ourselves left, before any real long-term damage is done.

Every day I'm reminded of how much I have to carry, what I'm left to be responsible for, and just how little energy and strength I have to take that on.  Physically I grow weaker each day.  My specialist has upped the Azathioprine about as high as I can take it, and I'm waiting to see if/when this begins to pivot the illness and begin to heal what's wrong.  In the meantime I'm extremely weak, often sick (nausea, etc.), and I have to lay down in bed several times a day now.  This means little gets done because I'm not able to do it myself.  Simple things, really.  Chores that I could handle easily back when I was healthy, living alone and with many more time-consuming responsibilities.  The difference between he and I is that I did what needed to be done and was glad to do it.  I can't live in a dirty or nasty environment so fight my way through the day trying to do what little I can.

I'm so so so done with this.

And since the communication is one-sided (out of his laziness. No joke there.) I'm beyond exhausted. I'm back to my focus being on ONE thing and ONE thing only--getting well.  I will be well enough to take my life back when the time comes and he's going to find himself in the dust when it happens.  It's his own doing, and he's not going to be happy about it when it happens, I promise.  He's been warned of this, and he's coasting along like he can't see it happening already.  But it is, happening already....

Cross-Post Rant Ahead.. "I'm DONE"

Trust me when I say... it's taken me from approximately 7:20am to 10:37am JUST to calm down enough to write.  Waking to indifference each day is grating on my nerves and sucking the life out of my life.  I'm not in the greatest of moods at the moment, and I'm not about to pretend I am.  It's been one HELL of a morning... let's just start there, shall we?

Okay, so all of my life I've believed that the old saying "Anything worth doing is worth doing RIGHT" is a damn good foundation for anyone's life.  Half-Assing ANYTHING reveals a lot about a person.  And by 'half-assing" I mean not putting everything you have into what you're doing.  Not to say your "everything" may not be on the same level every day, but putting in 100% of what you can is all anyone can really ask.  And why not?  Why would anyone do anything less than 100%?  When you take shortcuts you leave someone else to make up the difference in distance you weren't willing to go.

NOTE:  As always, unless I'm writing something aimed at someone in particular... the word "You" is used loosely and not meant to point fingers at anyone here.

My health is bad--I've spoken of this a lot in my blogs.  Dealing with one confirmed AI disease (AIH) and going through the paces of confirming a second means.. I'm NOT in remission.  I won't BE in remission for a very long time (I'm told).  The blood work COULD very well improve, the numbers will improve and possibly quickly, but 'remission' is more than numbers.  I won't go into all of that, but suffice it to say every single day is a battle to get through.  So here I am living with someone who, by nature, does ONLY what he can get away with and not a scintilla more.  What does this mean?  It means I have to take up the slack.  I not only have to do what I need and have to do, but I have to take up the slack from what he only does PART-WAY.

Half-Assers are a HUGE pet peeve of mine!

Look, I realize there will be days, times, and situations where you may have to take a short cut or do what you can in that moment.  But I also know that there are things that HAVE to be done correctly, thoroughly.  I mean, you can only short-cut your way through things until you end up with a completely and totally chaotic mess that SOMEONE ELSE will ultimately have to deal with.  Why the hell would you do this to someone, especially someone you claim to "love"?

This morning, like so many mornings (every morning!) I found myself forcing my way through cleaning up after T.  And I mean, cleaning up as in it takes me some 45-hour JUST to pick up the slack of his half-assed whatever.  Have I spoken to him about this?  Of course I have, and 2 years ago, when it really began, I was very calm, loving, and discussed the matter with him in hopes he would see what he was doing.  I mean, he's a grown up, and I'm not his mom.  He can pick up after himself, because he's no Ward Cleaver and doesn't treat me like Joan.  The family of the 1950's and 1960's are GONE.  Marriage and relationships aren't centered around women being in servitude.

Now, women who are treated with respect, treated kindly, appreciated.. will do almost anything for their guys.  It's how we're wired.  We're wired to be caretakers, caregivers, at least most of us.  However, when taken advantage of we often will begin to back off from all those things we once did easily, eagerly, and happily.  When taken for granted... we don't see any reason to continue giving when there's only taking from the other side.

And please, don't confuse this 'give and take' with material things or money, etc.  Because those things don't bring happiness, not ever.  What I'm talking about here is doing one's part in the relationship without placing the blinders on and thinking it's really just all about the other person doing all the work.

I've been in a relationship where everything was dumped solely on my shoulders.  People who know me, who pay attention, find out quickly that I can't be bought.  You can't buy your way out of unhappiness.  You just can't.  Being poor and happy is FAR FAR superior than being well-off and miserable.  Money can't get rid of unhappiness.. I really can't stress that enough.

Doing your part, that's what it's about.  Not placing necessary pressure or expectations on the other person is what it's about.  Respecting the other person's time is what it's about.  And soooooo much more, or course.  But when it comes to half-assing your way through chores because you know the other person will take up the slack for you... that's a sure-fire way to turn that person off, long-term.  And good damn luck getting them to be turned on again.

Being taken advantage of is not good foreplay.
Being taken for granted is not good foreplay.
Doing and not doing things that make the other person's life more difficult.. is not good foreplay.
Being overtly, blatantly lazy isn't sexy.
Indifference isn't sexy.
Ignoring someone isn't sexy.
Not respecting the other person's space, time, and needs isn't sexy, nor is it good foreplay.
Being mean, hateful, abusive.. isn't sexy, and it makes for LOUSY foreplay.

You treat me like shit, I'm going to shut down.
You abuse me, mentally, verbally, or physically.. and I'm going to shut down and NOT be into you.
Take me for granted and I'll stop doing things for you.

It's taken me years to get to this point, and I've been a welcome mat for a couple of people and won't ever allow myself to do that again.  I don't need anyone THAT much.  If I'm treated badly, eventually I won't feel anything at all for you, and you're going to find out that you really just can't un-ring that bell.

You can't buy me or my love.  I'm not for sale.  If you do something you claim is out of kindness or whatever, and you use it against me later.. you've given your true motive away!  Once I SEE you, what and who you REALLY are, I won't be able to see that 'other' person ever again.  Once you blow it, you blow it.

T is lucky in that there's still about 2% hope here.  This morning was just about the final straw, but I fought and worked my way past it, and I'm telling you it was DIFFICULT!  He knew, too.  He knew the moment I pointed out to him what he'd done.  He tried to backpedal, tried to reassure himself that he'd not blown it VIA me.  But what was done was done, and the disingenuous nature of what he did wasn't lost on me at all, and it broke something inside and change, again, the way I see him and feel about him.  Being disingenuous is exactly like lying, and I'm DONE being okay with men who lie to me, either by omission or right-out.  DONE.

That 2% of me that is still open to his finding a solution and fixing the whole disingenuous thing is stretched very thin.  He's running out of time.

Honesty and respect are MORE important than love.  My last relationship taught me that, opened my eyes to the fact that without those first two things.. LOVE CAN'T EXIST!  Love CANNOT exist in the absence of honesty and respect.

Besides struggling through a VERY PAINFUL morning trying to finish half-assed attempts at whatever, I also had to deal with the tuning me out thing, the thing where he pretends to vaguely respond because he knows he didn't hear a thing I just said.  No matter... I don't repeat myself anymore.  I do let him know, however, that I get that he didn't hear me and that all the begging in the world to repeat myself isn't going to make me do so.  After a year or more of this not listening/tuning me out thing.. I've grown intolerant to it.  I've told him that, fine, if he's that disinterested in what I have to say then I'll simply 'tell someone who gives a shit.'  He doesn't like it, but it's no longer about what HE likes and doesn't like anymore.  I've taken the first step in getting MY life back, replacing the disrespect he shows towards me with my own SELF-RESPECT; something I really should've done a long, long time ago.  Better late than never, I say.

So this morning was NOT a good morning.  But I'm going to spend the remainder of my day taking care of myself, focusing on what I can do to help myself heal, and incorporating those things that will protect me from further harm from anyone, especially from the person I'm living with.  Yes, I still have to work through the damage from the past relationship, but that's already underway and will help with my current situation.

Well, that's where I am today.  It will get better, and I will keep persevering... as long as I can.

When Bitchy Doesn't Make You a Bitch

So I had a little time to write about "My Inner Child is a Bitch" on Where Fireflies Dream (link on the side bar).  In some ways I'm trying to hang on to the humorous side of things in an attempt to thwart being knocked on my ass by life, my health issues, and this damned chronic pain and fatigue (etc).

As you know, we've pretty much become the most butthurt and offended society in the damn world.  People are losing their sense of humor trying to be as politically correct as possible, and the end result is that their egos inflate to a point where, I swear, their heads are going to explode!  WTH is up with that anyway?  Doesn't matter, because "I" refuse to go there.  I'm keeping my crazy sense of humor, thank you very much. ;)

Whatever happened to people not taking themselves so seriously, anyway?  I know, I know.  It's the trend now, the "in thing" to be not just overly politically-correct, but also to be OVERLY-FREAKING-SENSITIVE.  Walking on eggshells is now what we have to do in order to NOT offend someone.  Again, there is no freaking way I'm going to edit what I think or feel or say or do based on anything OTHER than morals and ethics.  I will never base my behavior, etc. on what's politically-correct at the time.  Nope. No way, Jose.

Somehow, some way, I do hope people's butthurt heals. Hell, have the butthurt removed, because it's a cancer.  Or, put an emotional bandaid on it and pull up your big girl/big boy undies and get on with life already!

No---we should NOT EVER subscribe to being insensitive or deliberately hurting another's feelings.  And if that happens, apologize.  But be who you are!  Laugh at yourself sometimes!

Here's a thought:  Buy a clown nose, and when you find yourself completely pissed off.. put it on and take a few selfies.  You don't think that will work???  Try it!  Seriously! ;)  I think you'll be pleasantly surprised.